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TikToker Bendri Booysen’s family announced her death on Dec. 18, following her life-long battle with the rare condition Progeria.
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One of TikTok’s brightest stars has passed away.
South Africa’s Beandri Booysen has died following a life-long battle with the Progeria, her family confirmed. She was 19.
“It is with deep sadness that we announce the passing of Beandri Booysen, one of South Africa’s most beloved and inspiring young women,” her mother Bea Booysen wrote, via translation, on Facebook Dec. 18. “Beandri was not long known for her vibrant personality and infectious laugh but also as the last surviving individual in South Africa living with Progeria—a rare genetic condition that causes children to age prematurely.”
According to the Mayo Clinic, Progeria—also known as Hutchinson-Gilford progeria syndrome—is an “extremely rare, progressive genetic disorder. It causes children to age rapidly, starting in their first two years of life.”
According to the site, the average life expectancy is 15 with some individuals living to around 20 years old.
Following her passing, Beandri’s family paid homage to the social media star for her work bringing awareness to the condition and being a light for those in need.
“Despite the challenges she faced, Beandri radiated hope and joy,” the message on Facebook continued. “She became a symbol of awareness for Progeria and other special needs, using her unique spirit to inspire thousands of people worldwide.”
“The Booysen family kindly requests privacy during this profoundly difficult time as they mourn the loss of their beloved Beandri,” it read. “Further details regarding the memorial service will be shared in due course.”
Beandri, Our Inspiration/Facebook
Beandri had over 278.7K followers on TikTok and over 400k likes. Her videos often included inspirational clips of her walking following surgeries, attending church services, and joining others in educating on her conditions. In October, her family shared that she would be undergoing heart surgery.
In the wake of her death a tribute video was shared on her page where fans remembered her impact.
As one user wrote, “RIP Little angel who made a big impact.”
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