Louise Thompson breaks down in tears in unseen footage from hospital while battling the 'trauma' of incurable inflammatory bowel disease.
The former Made In Chelsea star, 36, was diagnosed with Ulcerative Colitis in 2018 and in April 2024, was fitted with a stoma after falling ill during the trip to Antigua ahead of having her colon removed.
On the holiday she lost significant amounts of blood, could not walk or hold her son, and had to book an early flight home.
Ulcerative colitis is a chronic bowel condition where the colon and rectum become inflamed and small ulcers develop on the colon's lining, which can bleed.
A stoma is a surgically-created opening made on the abdomen, which is made to divert the flow of body waste into a medical device, which the person can then empty. Louise has named her bag 'Winnie' in a nod to Winnie The Pooh.
On Tuesday she marked World IBD Day with a new Instagram post as she discussed how tough it has been to manage the illness.
Louise Thompson breaks down in tears in unseen footage from hospital while battling the 'trauma' of incurable inflammatory bowel disease
The former Made In Chelsea star, 36, was diagnosed with Ulcerative Colitis in 2018 and in April 2024, was fitted with a stoma after falling ill during the trip to Antigua ahead of having her colon removed
Alongside she shared clips and pictures of herself in hospital and breaking down while struggling to cope with the pain.
She penned: 'The night before I lost an organ, I was still posting photos of my outfit. That's the strange thing about Ulcerative Colitis. You can look completely fine while your body is quietly falling apart.
'I've lived with an IBD (Inflammatory bowel disease) for nine years now. Nine years of an incurable disease people still barely talk about unless it happens to someone they love.
'For me, it started as stomach pain. I thought it was food poisoning. Then blood. Then exhaustion. Then a colonoscopy that diagnosed me with UC. An incurable disease where your immune system attacks your own body.
'Fast forward a few years, and I found myself in a hotel bathroom in Antigua, losing an egg cup full of blood every twenty minutes while my two-year-old son sat outside the door. And still, I told myself it was 'just a flare'.
'I thought the copious steroid tablets I was taking would help. I was told they would, and I trusted them. The truth is, I think they were battering my tummy. I had a thin white powder pouring out of my bum, but I was told it was mucous. It was NOT mucous. I couldn't hold anything in. I was leaking.
'Then the prolapse. The problem is that when you live with chronic illness long enough, you become very good at normalising the unacceptable. It grinds you down.'
She continued: 'But one of the things that people might not realise about IBD is that it can become life-threatening, so when people snub it as IBS or a gluten intolerance it can feel hurtful.
'When I returned home, I developed fulminant colitis. My albumin was on a sharp downward trajectory, and I stopped absorbing food which can be dangerous. As patients we know our bodies and we shouldn't have to fight so hard to be taken seriously.
'Despite ALL of my combined trauma, I have still been turned away from A&E while holding a measuring jug full of blood.
On Tuesday she marked World IBD Day with a new Instagram post as she discussed how tough it has been to manage the illness
Alongside she shared clips and pictures of herself in hospital and breaking down while struggling to cope with the pain
She penned: 'The night before I lost an organ, I was still posting photos of my outfit. That's the strange thing about Ulcerative Colitis. You can look completely fine while your body is quietly falling apart...'
She added: 'But one of the things that people might not realise about IBD is that it can become life-threatening, so when people snub it as IBS or a gluten intolerance it can feel hurtful'
Louise said: 'I've lived with an IBD (Inflammatory bowel disease) for nine years now. Nine years of an incurable disease people still barely talk about unless it happens to someone they love'
Ulcerative colitis is a chronic bowel condition where the colon and rectum become inflamed and small ulcers develop on the colon's lining, which can bleed
A stoma is a surgically-created opening made on the abdomen, which is made to divert the flow of body waste into a medical device, which the person can then empty
Louise has named her bag 'Winnie' in a nod to Winnie The Pooh
She concluded her post by saying: 'Apparently, there were 'no doctors available to see me', and my bloods were holding up ok. A week later, I was rushed into emergency surgery following an internal perforation and fluid in all four quadrants of my abdomen. Unfortunately, this is not a problem that is going away.'
It comes after back in March Louise shared an emotional update on her health woes, as she continued to recover from post-traumatic stress disorder.
Louise is currently in therapy for her PTSD - with her victory in March coming with her returning to Antigua two years after she was forced to cut short a trip to the island to have her colon removed.
In March Louise proudly revealed she has returned to the traumatic spot with son Leo, four, and her partner Ryan Libbey, saying: 'This was a beautiful opportunity to re-write those memories in better health'.
Alongside a lengthy caption detailing her emotions, Louise cosied up to her son while also sharing stunning scenery snaps showing the pair by the water.
In the caption, she wrote: 'I don't know where to begin but Antigua is very, very nice. I actually came out here 2 years ago but the trip was cut short because I had to fly back home to have my colon removed after reaching fulminant ulcerative colitis...
'This was a beautiful opportunity to re-write those memories in better health. If you've listened to the pod you'll know I was a little anxious in the run up...
'Travelling with ptsd can be hard. I experience major dissociation on day 2 when my brain panics post travel day (routined) when I suddenly have a lack of routine, but newsflash, I haven't felt bad ONCE in the almost two weeks that we've been here...
'I feel like I've turned a major corner in my recovery and I'm unimaginably happy about it. I hope this lil update provides hope to anyone going through the wringer atm. I have ALL the serotonin coursing through my body. No aids...
'Just movement, sunlight, seafood, happy thoughts, sleep. Lots of it. Oh and little to no screen time. My family are archaic so practically surviving on iPhone 6's and proper maps in the car...
'In case you didn't know 90-95% of serotonin is produced in the gut so it's unsurprising that when I was physically unwell for all that time my mental state was absolutely cooked...
'It also affects digestion and clotting and lots of other important processes. I'm going off on a tangent but I feel like I want to do some research around what happened to me re: ssri's, gut health, digestion, bleeding, the nervous system because they're all interconnected… and I still bleed in weird places....
'Yes places I can see. Just not where I should as a woman once a month. It's a minefield. Anyway a few years ago I thought I'd never enjoy travel again but here we are like a totally normal family...
'I won't lie, I have a few safety nets to lean on. I think that's being sensible. I brought an armory of lotions and potions, probiotics, magnesium balm, soaks, tea bags and things to make me feel like I am at home...
'Including a newfound dream cream for fissures. Who ever thought I'd be saying those words. Is it the air pressure? Last time I was here I basically had a prolapse so it's all up from 2024. I think it all helped.'
The month before Louise had shared an emotional letter to her stoma bag, two years after having the bag fitted while undergoing a life-saving procedure.
On the anniversary of having Winnie fitted, she shared a post and emotional video addressing her combined gratitude and resentment for the life-changing device.
She wrote: 'Winnie was born 2 years ago. And we've been attached at the hip ever since. I'm not normally compatible with Aquarius signs but then again this wasn't a relationship that I chose. We were thrown in to each other's lives out of necessity...
'It's been an interesting journey. You've taught me a lot. I think I owe you a lot. Sometimes you're my best friend, other times I hate you...
'You're clever stubborn overly honest - I don't need to know that much detail about my health thank you very much. It's funny to think that you might be in my life forever.
'Clinging on right up until the end. Two years on and I'm still making my peace. Although I did have a massage two nights ago as a v day treat and I really resented you...
'I couldn't be bothered to explain my situation to the lovely foreign massage therapist who thought I said I have stomach problems instead of a stoma bag...
WHAT IS ULCERATIVE COLITIS?
WHAT IS ULCERATIVE COLITIS?
Ulcerative colitis is a long-term condition, where the colon (the bowel) and rectum become inflamed. It affects around one in every 420 people living in the UK.
Small ulcers can develop on the colon's lining, and can bleed and produce pus.
Symptoms include recurring diarrhoea, which may contain blood, mucus or pus, abdominal pain and needing to empty your bowels frequently.
People may also experience fatigue, loss of appetite and weight loss.
WHAT CAUSES ULCERATIVE COLITIS?
Ulcerative colitis is thought to be an autoimmune condition which means the immune system - the body's defence against infection - goes wrong and attacks healthy tissue.
The most popular theory is that the immune system mistakes harmless bacteria inside the colon for a threat and attacks the tissues of the colon, causing it to become inflamed.
Exactly what causes the immune system to behave in this way is unclear. Most experts think it's a combination of genetic and environmental factors.
(Information via NHS)
'I nodded and prayed that she didn't get all up in my groin or she'd have had a right fright. Sometimes I wish you away...
'Especially this last month when you've been raking me up from my deepest sleep and sweetest dreams every single night. Good practice for another kid I guess...
'Sometimes it's ok to complain. I never do. I joke, but I don't complain. I'll complain about a chip on the sideboard or the dogs barking. But never about Winnie. Even when she leaks. It's good I've got a solid handle on 'perspective'...
'For the most part life is a breeze. This morning I'm allowing myself a moment of reflection… I'm sat here writing this and feeling grateful to the first person who ever performed a colectomy … can you believe this -
'The first recorded colectomy was a right hemicolectomy performed in 1732 by the French surgeon George Arnaud de Ronsil. The EARLY 1700s...
'I wouldn't wanna be the person on that operating table. Thanks to the team that did mine so tidily (I think) and so safely. And thanks to all the test subjects before me. I wonder what will be possible for ibd / colon cancer sufferers in the future? x x...
'If anyone has any questions please fire away as I know it's a little unusual.'
What is a stoma?
A stoma is a surgically-created opening made on the abdomen, which is made to divert the flow of urine and faeces.
According to the NHS, this procedure may be needed if you cannot pass stools through your anus, which could be the result of an illness, injury or problem with your digestive system.
In the UK, it is estimated that one in 335 people have had the surgery.
The procedure can be part treatment for a number of illnesses, including cancer, diverticulitis, Crohn's disease or any trauma to the abdomen.
The stoma will generally be 'pink and moist - like the inside of our mouths'. After the surgery, it will be swollen, but this will reduce in six to eight weeks.
There is no sensation to touching a stoma - as there are no nerves - but different people will have theirs in a different size or shape.
It is also possible to have a temporary stoma, which could later be reversed, if the diseased or damaged area in the bowel needs to heal over time.
A stoma is a surgically-created opening made on the abdomen, which is made to divert the flow of urine and faeces. Stock image used
TYPES OF STOMA
COLOSTOMY
This refers to an opening in the colon - the large intestine. During the operation, a part of the colon will be brought from inside the body through their abdomen. The output from this 'often resembles a traditional stool' and functions around one to three times a day.
ILEOSTOMY
For this procedure, the surgeon will bring a part of the small intestine - the ileum specifically - from inside the patient's body and bring it through the abdomen, stitching it down to secure it. The output for an ileostomy is looser than that of a colostomy. An ileostomy bag - which enables drainage into the toilet between three to six times a day' - is also worn.
UROSTOMY
A urostomy refers to an opening for a person's urine specifically. For this, the surgeon will take a piece of someone's small intestine and attach it to the ureters. This will 'form a passageway for urine to pass through'. For this, one of the tube is brought out through the abdomen. A urostomy bag will also have a 'bung or tap on the bottom to allow urine to be drained at regular intervals into the toilet'.
Source: Colostomy UK, NHS

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